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#1126 2019-05-09 01:47:55

Blackie
Inebriated
From: US
Registered: 2017-07-12
Posts: 72

Re: Writing Status

Eric Storm wrote:

I hate doctors.

So, I had to go to the rheumatologist today. I described some random pains I was having to my GP, and she thought it might be auto-immune problems, so did some bloodwork, which showed there is definitely "an issue". So she sent me to the rheumatologist (which is the doctor who deals with auto-immune issues).
<snip done here>
Have I mentioned, I hate doctors?

I don't hate doctors. I just understand there's a very strong limitation on their ability to diagnose without a clear cut set of symptoms. This has clearly been the case since I was... nevermind how old.

Random pains, huh? I had one I swore was a muscle pain. It's not. It's a nerve pinch problem. I had another I swore was a joint pain. It's not. Same nerve pinch.

I'm very sorry you are suffering. Hope you feel better.


-Himself

"Typos are very important to all written form. It gives the reader something to look for so they aren't distracted by the total lack of content in your writing." -Randy K. Milholland

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#1127 2019-05-09 02:24:06

Eric Storm
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From: New Port Richey, FL
Registered: 2006-09-12
Posts: 5753
Website

Re: Writing Status

Thank you for the thought, but I sincerely doubt it will come to pass.  The older I get, the more pain I end up being in.  I have bad knees, a problem in my back, tendinitis in both elbows, acid reflux, bad teeth, sinus issues, possibly migraines of an unusual type...  Generally speaking, I'm the sickest healthy person I know.  (I call myself healthy only because most of my lab work comes back in the normal range.)

The random pains I feel are neither joint-related nor muscular... they never occur in joints, and the pain is never big enough to encompass a muscle.  The biggest ones I suffer of this variety are those that occur in the middle of a finger, and then it seems to circle the entire finger.  Otherwise, they're basically pinpoint pains.  They usually last for a few hours... maybe a day, at most.  They appear randomly, and disappear randomly.  *shrugs*  They've never been something I couldn't live with... and apparently, I'm gonna have to live with them.

I do appreciate your well-wishes, though.

Eric Storm


Please Remember:  The right to Freedom of Speech does not carry the proviso, "As long as it doesn't upset anyone."  The US Constitution does not grant you the right to not be offended.  If you don't like what someone's saying... IGNORE THEM.
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#1128 2019-05-18 06:57:16

bigfoot
Wasted
Registered: 2016-05-06
Posts: 139

Re: Writing Status

I hate to even suggest this but since you are already seeing a rheumatologist, have him/her look at the possibility of rheumatoid arthritis. RA is an immune system disorder whereby a faulty immune system starts attacking healthy parts of the body (bones, tissues, tendons, etc.,). I have it and what you describe certainly suggests the possibility of RA. Hope I'm wrong and that you're okay.

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#1129 2019-05-18 16:14:24

Eric Storm
Pub Owner
From: New Port Richey, FL
Registered: 2006-09-12
Posts: 5753
Website

Re: Writing Status

*snort*  The rheumatologist said, "Come back when you have some symptoms."  He was mainly concerned with lupus, given my blood work.  (Although anyone who watched House knows, "IT'S NEVER LUPUS!3dsmile  )

Doing a brief check at the Mayo Clinic's website, I don't seem to have the symptoms for RA, because the one place this pain does NOT occur is in my joints.  The joints I have that hurt are due to other, known problems.  (I have bad knees, and a diagnosed problem in my back).  All of these random pains are outside of the joints. 

Now, I wouldn't doubt that I'm developing arthritis... I do get stiff if I sit too long... but I think that would be of the osteo variety instead of the RA variety.  Or that stiffness could be muscular, and have nothing to do with my joints.  *shrugs*  All I know is it hurts, and that sucks.

Thanks for your concern, and the suggestion, but for now, it doesn't seem like that's something to worry about.

Eric Storm


Please Remember:  The right to Freedom of Speech does not carry the proviso, "As long as it doesn't upset anyone."  The US Constitution does not grant you the right to not be offended.  If you don't like what someone's saying... IGNORE THEM.
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#1130 2019-05-19 06:30:22

bigfoot
Wasted
Registered: 2016-05-06
Posts: 139

Re: Writing Status

Last suggestion - take a look at fibromyalgia. It encompasses a myriad of symptoms and no two people experience the same. However, people looking for answers to explain their acute and/or chronic pain often find something in fibromyalgia (or even myofascial pain syndrome). Good luck.

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#1131 2019-05-19 15:57:22

Eric Storm
Pub Owner
From: New Port Richey, FL
Registered: 2006-09-12
Posts: 5753
Website

Re: Writing Status

My doctor and I have already ruled out fibromyalgia, because I don't have any of the sensitive trigger spots that seem to be universal with fibromyalgia patients. 

Never heard of the other one, but a quick look at the Mayo Clinic's website (the Mustard Clinic's page was down... 3dbig_smile), doesn't show it to be a match, either.  It talks about muscular pain that doesn't go away, or worsens.  These pains do not feel muscular, and also, they don't linger.  They last for hours... maybe up to a day, then vanish as rapidly and randomly as they appeared.  The pain is not "knot-like", it is either "pin-prick-like", "ring-like" (if it happens in one of my fingers), or just a general small area of pain... but not in the sense of a knot: if I press on the area, I don't feel any tightness.

This is why I'm pretty sure the pain is neural: it just doesn't fit the basic concepts of actual "physical" pain... unless it is referred pain, but given that the pains happen all over my body, it would be a pretty weird case of referred pain.

Most doctors would probably just tell me to take some Tylenol and go on with things.  I'd accept that advice... except that Tylenol doesn't work on me.  3dsad  (Neither do most other painkillers... up to and including morphine...)

Eric Storm


Please Remember:  The right to Freedom of Speech does not carry the proviso, "As long as it doesn't upset anyone."  The US Constitution does not grant you the right to not be offended.  If you don't like what someone's saying... IGNORE THEM.
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#1132 2019-05-20 01:24:23

Blackie
Inebriated
From: US
Registered: 2017-07-12
Posts: 72

Re: Writing Status

Eric Storm wrote:

<snip>
This is why I'm pretty sure the pain is neural: it just doesn't fit the basic concepts of actual "physical" pain... unless it is referred pain, but given that the pains happen all over my body, it would be a pretty weird case of referred pain.
<snip> ... except that Tylenol doesn't work on me.

I assume you've been put through the MRI for them to look at your spine for impinging disk material.

Tylenol does nothing for me either. Ibuprofen for muscle pain, Aspirin for headaches, and for more serious pain, something else more serious, which I use sparingly. Sorry you seem to be immune to some of the more serious pain relief methods. Then again, it's been my observation almost all the drugs for pain have about the same affect as being drunk- that being, you still feel the pain but you just find you don't care anymore.

There are means of tracing neural pathways for interrupting pinches (a lot like tracing wiring outlets oddly enough), other than the spine that is. But that would require it to be somewhere regularly and relatively identifiable for them to test.


-Himself

"Typos are very important to all written form. It gives the reader something to look for so they aren't distracted by the total lack of content in your writing." -Randy K. Milholland

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#1133 2019-05-20 02:53:12

Eric Storm
Pub Owner
From: New Port Richey, FL
Registered: 2006-09-12
Posts: 5753
Website

Re: Writing Status

I had a back problem diagnosed through an x-ray.  (What the hell they could tell by x-ray, I have no idea... I couldn't tell anything from it...)  The conclusion from the radiologist was that the problem was not serious enough for further effort at this time.

I wouldn't know about being drunk... alcohol makes me sick long before I could get drunk, so...

Eric Storm


Please Remember:  The right to Freedom of Speech does not carry the proviso, "As long as it doesn't upset anyone."  The US Constitution does not grant you the right to not be offended.  If you don't like what someone's saying... IGNORE THEM.
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#1134 2019-05-20 03:43:04

Augur
Wasted
Registered: 2012-08-23
Posts: 104

Re: Writing Status

Acupuncture helps against chronic pains, but you should still see a regular medic first in order to diagnose what´s really causing the problem. As for the rest could be neurological. Among other diseases, diabetic neuropathy has somewhat similar symptoms to what you describe, but so do many others.

Also sometimes when the pain is caused by inflammation, then ibuprofen and other pain relievers that are also anti-inflammatory, do help. I have found that acetaminophen, (tylenol and such) doesn´t do almost anything at all for me. As in the pain killer effect is barely if at all perceptible, but it does help against fever if I happen to have one. Ibuprofen on the other hand isn´t perfect but when it´s an inflammatory kind of pain, it does take the edge off (as in a 40-60% reduction in pain, but what´s more important, it helps reduce inflammation which further reduces pain later on).

Supposedly weed, or rather CBD oil (cannabidiol) could help too. It´s particularly good with some "untreatable" pains, including neurophatic pain.

Last edited by Augur (2019-05-20 03:44:31)

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#1135 2019-05-20 13:03:49

Blackie
Inebriated
From: US
Registered: 2017-07-12
Posts: 72

Re: Writing Status

Eric Storm wrote:

I had a back problem diagnosed through an x-ray.  (What the hell they could tell by x-ray, I have no idea... I couldn't tell anything from it...)  The conclusion from the radiologist was that the problem was not serious enough for further effort at this time.

I wouldn't know about being drunk... alcohol makes me sick long before I could get drunk, so...

Eric Storm

Seems to me you need to speak to a neurologist. They're going to want an MRI. From that they will be able to get a better idea if your spinal nerve bundle is being impacted by the intervertebral disks between your vertebra impinging.

I have the problem with the disks in my lower spine doing this to me. The pain when it's bad, and I mean level 9 out of 10 bad which is simply not common, causes pain across the right half of my groin and the right half of my balls feel like someone is crushing them, my left leg ends up with sciatic pain down the leg/knee/toes (pain in the toes coming from the spine sucks by the way), and my right side feels like a muscle is being torn over an area of a foot in length. All that, and the surgeon told me they are likely to make it worse if they operate... second opinion coming soon. It's a problem I've had since I was about 13 so I am somewhat accustomed to it.

As to the drunk thing, it was for comparison to how the pain meds can provide no relief and still have effects.


-Himself

"Typos are very important to all written form. It gives the reader something to look for so they aren't distracted by the total lack of content in your writing." -Randy K. Milholland

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#1136 2019-05-20 17:19:21

Eric Storm
Pub Owner
From: New Port Richey, FL
Registered: 2006-09-12
Posts: 5753
Website

Re: Writing Status

Augur:

Maybe you weren't paying attention, but I have already been to a "medic", as you call it.  In fact, I've seen three different doctors in recent days in regards to one or the other of my various pains.  The problem(s) is still undiagnosed.  The truth is, I expect it to stay that way.  I have crappy insurance, and the symptom isn't life-threatening, so they're probably not going to work much harder at resolving it.

As to diabetic neuropathy, I'd have to be diabetic first... or at least close to it.  My last A1C reading was 5.0... not exactly diabetes territory.

Blackie:

I'll see what my GP suggests when I go to see her in July.  Not really looking forward to spending an hour and a quarter in an MRI machine, however.  (thoracic + lumbar MRI: 45 + 30 minutes)

Eric Storm


Please Remember:  The right to Freedom of Speech does not carry the proviso, "As long as it doesn't upset anyone."  The US Constitution does not grant you the right to not be offended.  If you don't like what someone's saying... IGNORE THEM.
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#1137 2019-05-20 19:11:08

Augur
Wasted
Registered: 2012-08-23
Posts: 104

Re: Writing Status

Eric, no need to be curd and skippy about it. If one medic can´t find the reason may be another can. That´s called looking for a second, or third, or twentieth opinion if necessary. Frequently it´s difficult to get the right diagnosis, as doctors are people and they think about illnesses or conditions they either have seen before, or at least remember from their studies. As for insurance, well, yep, that´s a difficult one. You can either keep researching the stuff yourself and then just go and ask your doctor for a diagnostic exam to confirm, or go to a good specialist in the field you think your pain could be caused by (even if you have to pay for the consult, as consults are cheap compared to actual clinical exams) for his/her opinion on the subject. But it all depends on how much does the pain bother you and on you doing a lot of research to at least know which specialist to go to.

As for diabetic neuropathy, that was just an example of a possible illness that can cause this. Neuropathy can have various reasons, and sometimes be idiopathic all together (as in unknown reasons). But if you at least know that the cause is nerve degeneration (neuropathy), then there are some paliative treatments that may help at least in some cases.

Finally, even without knowing the direct cause, sometimes acupuncture (if you can actually fin a bonafide good acuptucture specialist) can help. It has certainly helped my god mother and her husband with their pains. Also I remember suggesting cannabidiol or other non narcotic cannabis extracts, which have also been known to help with chronic pain.

What I mean to tell, is that I know and have had family members deal with chronic diseases and pains. Sometimes the search for a solution may take years, even decades, sometimes you can´t find anything, but if you start now (of course according to what´s possible for you), the sooner you may finally find if not a cure, at least something that may help, if it exists. Otherwise untreated chronic conditions tend to get worse, not better with time. So...  you decide. I´m just trying to float some suggestions of what has helped people I know with chronic pains of your sort. But you are the one that knows best his symptoms and what you have already done and what you actually haven´t tried, so take my ideas as you wish. I´m just trying to help Eric.

Last edited by Augur (2019-05-20 19:12:48)

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#1138 2019-05-20 20:04:18

Eric Storm
Pub Owner
From: New Port Richey, FL
Registered: 2006-09-12
Posts: 5753
Website

Re: Writing Status

"curd and skippy"?  Um... did you mean "curt and snippy"?  3dsmile

My comment wasn't meant to be curt, it was a reflection of the fact that your post sounded like you hadn't read my previous post.  You didn't say "another" medic, you just said a medic... well, since I'd already seen doctors, and mentioned it, your comment sounded as if you hadn't been paying attention.

As to the other things you've mentioned... they require money that I simply don't have.  For instance, the rheumatologist I went to see is the only one on my insurance.  I do not have $200 to go see another one.  (I'm estimating that amount, but given what I've seen on my insurance statements, this sounds about right for a specialist.)  CBD oil and accupuncture are not covered by my insurance, and both are out of my price range out-of-pocket, so long as I insist on actually eating every day.

I can do all sorts of research, and have, but that just makes me paranoid, because my symptoms are so generic that they fit a gazillion... no, wait, I did more research recently, a gazillion and SIX... illnesses.

As to the pain getting worse... I've had it for well over a decade now, and it has remained unchanged.  If it gets worse, then maybe there will actually be some indication of what's causing it, but for the moment, it's not severe enough for me to stress myself out over it.  These pains are at the "annoying" level, not the "debilitating" level, so... *shrugs*

Eric Storm


Please Remember:  The right to Freedom of Speech does not carry the proviso, "As long as it doesn't upset anyone."  The US Constitution does not grant you the right to not be offended.  If you don't like what someone's saying... IGNORE THEM.
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#1139 2019-05-20 20:28:14

Blackie
Inebriated
From: US
Registered: 2017-07-12
Posts: 72

Re: Writing Status

Having been through MRI more times than I care to mention, all I can say is, yeah, little tubey things you have to lay still in and hold your breath suck. A lot.

Sorry.


-Himself

"Typos are very important to all written form. It gives the reader something to look for so they aren't distracted by the total lack of content in your writing." -Randy K. Milholland

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#1140 2019-05-20 21:03:13

Augur
Wasted
Registered: 2012-08-23
Posts: 104

Re: Writing Status

Yep, curt, english is just my third language, so I do make mistakes from time to time.

Well it was curt, although many people are prone to being that way. As for the way I mentioned seeing a medic, well, yes, it was open to that interpretation too, I apologize, although it was meant as a general statement on the subject. As in you need to see a regular medic to discard possible dangers before going for alternative medicine options, even better if you have yourself a diagnosis. Just to make sure you aren´t actually harming instead of helping yourself with those alternative options. In other words, avoiding doing a Steve Jobs on your health.

Well you know your finances better, so I won´t dispute it, and if the pain isn´t getting worse and isn´t more than a minor annoyance, well, I admit in such cases there are always higher priority expenses (happens to me all the time), so...

Good luck anyway Eric.

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#1141 2019-05-21 07:09:19

ChiefRock
Wasted
From: Oklahoma
Registered: 2010-11-29
Posts: 224

Re: Writing Status

Eric my wife has severe pain from many sources. I have good insurance but it also does not cover the new cd whatever oil although I have bought it for her for 3-4 months roughly 155 a month. Linda has been caught in the political opiod wars. do not get me started. she no longer takes the oil as the results did not seem effective, just like almost every thing we have tried.

Last edited by ChiefRock (2019-05-21 07:18:01)


My worst day at sea is better than my best day ashore
I found a home in the navy-but they land airplanes on my roof

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#1142 2019-05-21 16:36:15

Eric Storm
Pub Owner
From: New Port Richey, FL
Registered: 2006-09-12
Posts: 5753
Website

Re: Writing Status

I'm sorry that your wife is stuck with that pain.  Luckily for me, my pain is - so far - still at the "annoying" stage, rather than the debilitating stage.  I have no hope or expectation that it will ever get better, but I'm hopeful that it decides not to get worse.  Honestly, I couldn't tell you the last day of my life that wasn't fraught with some kind of pain or other... I'm sure your wife is similar, and it universally sucks.

I did a lot of reading about the CBD oil, because Keeshaba was looking at it as an option for some of her problems.  The things I read didn't really convince me it was worth the expense.  Maybe it works, maybe it doesn't, but yeah, at $150/mo., it doesn't matter if it does or not.

Eric Storm


Please Remember:  The right to Freedom of Speech does not carry the proviso, "As long as it doesn't upset anyone."  The US Constitution does not grant you the right to not be offended.  If you don't like what someone's saying... IGNORE THEM.
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#1143 2019-05-23 02:41:30

ChiefRock
Wasted
From: Oklahoma
Registered: 2010-11-29
Posts: 224

Re: Writing Status

155 is a bite out of a budget but Lindas pain meds have been reduced from 100mcg fentanol to 25 with nothing else to combat pain She is not on hospice and her doctors are operating on laws that can send them to prison. Pisses me off because the deaths they quote are from abuse and my wife has had this script for 10 years and always follows rules exactly


My worst day at sea is better than my best day ashore
I found a home in the navy-but they land airplanes on my roof

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#1144 2019-05-23 04:04:44

Eric Storm
Pub Owner
From: New Port Richey, FL
Registered: 2006-09-12
Posts: 5753
Website

Re: Writing Status

Yeah, government never manages to actually fix the problems they stick their noses into, do they?

Eric Storm


Please Remember:  The right to Freedom of Speech does not carry the proviso, "As long as it doesn't upset anyone."  The US Constitution does not grant you the right to not be offended.  If you don't like what someone's saying... IGNORE THEM.
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#1145 2019-06-09 03:52:39

ChiefRock
Wasted
From: Oklahoma
Registered: 2010-11-29
Posts: 224

Re: Writing Status

So-- I have been reading, and exhausting 4-5 other sites I read from. Sci fi and erotica (I do not discriminate) I have exhausted my sources. anything new coming up????


My worst day at sea is better than my best day ashore
I found a home in the navy-but they land airplanes on my roof

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#1146 2019-06-09 07:41:47

Eric Storm
Pub Owner
From: New Port Richey, FL
Registered: 2006-09-12
Posts: 5753
Website

Re: Writing Status

Update for June 9, 2019:

Artifacts 2: The Coin, Chapter 4 has been posted to PRM.

I do have to apologize to everyone... I have no idea why this wasn't posted already.  This chapter went to review over three YEARS ago.

At least you'll have something to read for an hour or two.  Longer, if you go back and re-read the first three chapters...

Eric Storm


Please Remember:  The right to Freedom of Speech does not carry the proviso, "As long as it doesn't upset anyone."  The US Constitution does not grant you the right to not be offended.  If you don't like what someone's saying... IGNORE THEM.
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#1147 2019-06-09 17:50:55

ChiefRock
Wasted
From: Oklahoma
Registered: 2010-11-29
Posts: 224

Re: Writing Status

Thanks Eric


My worst day at sea is better than my best day ashore
I found a home in the navy-but they land airplanes on my roof

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#1148 2019-06-10 01:06:03

Blackie
Inebriated
From: US
Registered: 2017-07-12
Posts: 72

Re: Writing Status

Eric Storm wrote:

Update for June 9, 2019:

This chapter went to review over three YEARS ago.

tsk. That's only yesterday, at least, as I see it.


-Himself

"Typos are very important to all written form. It gives the reader something to look for so they aren't distracted by the total lack of content in your writing." -Randy K. Milholland

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#1149 2019-06-10 02:06:00

Eric Storm
Pub Owner
From: New Port Richey, FL
Registered: 2006-09-12
Posts: 5753
Website

Re: Writing Status

Maybe, but my basic policy for most stories is to release the chapter as soon as it gets back from reviewers and has gone through its final proofread.

I still, even after going back and reading the relevant portion of this thread, do not know why I never posted this chapter.  *shrugs*

Eric Storm


Please Remember:  The right to Freedom of Speech does not carry the proviso, "As long as it doesn't upset anyone."  The US Constitution does not grant you the right to not be offended.  If you don't like what someone's saying... IGNORE THEM.
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#1150 2019-06-10 03:50:05

Blackie
Inebriated
From: US
Registered: 2017-07-12
Posts: 72

Re: Writing Status

I don't have any reviewers. I have to post edit and clean up my own writing. I used to give it only one pass for a time. I don't know exactly when, some time about a decade or so ago, I started giving things a few more read through efforts.  For more pedestrian writing I do have someone to do some editing.


-Himself

"Typos are very important to all written form. It gives the reader something to look for so they aren't distracted by the total lack of content in your writing." -Randy K. Milholland

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